Endometriosis Books

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After I failed with my “Endo diet” last year, I decided to do better this year. I told my husband last month that I want to buy a book by Dr. Andrew S. Cook, MD, FACOG titled “The Endometriosis Diet Health & Diet Program: Get Your Life Back“. He told me that he will order it for me. The book arrived in the third week of January. And guess what? Instead of one, he ordered me three books about Endometriosis! Yay! I love my hubby! The funny thing was, at that time we didn’t even know that I have Endometriosis and that I wanted Dr. Cook’s book just because I was interested in the Endo diet he has. It was like the universe being kind to me, it gives me a heads up!

The three books he got me are:

I haven’t read them all. I only finished the Endometriosis Health & Diet Program book. In my opinion, this book is really good! I have spent so much time researched about Adenomyosis – which most of the time I also read about Endometriosis -, and this book tells you everything about it. You don’t have to spend hours researching on the internet, you just need to read this book. It’s just like a bible for people with Endometriosis!

Just check the table of contents:

This book is very informative. Other than give you abundant information about Endometriosis, this book also gives you a detail information about how to change your lifestyle (detoxing, stress reliefs, optimizing sleep, exercises, herbal and supplemental supplements), diet plan for Endometriosis and Pelvic Pain, and recipes for Endometriosis and Pelvic Pain. It gives you a week worth example of exercise plan, a whole 10-18 weeks sample of Endo diet plan, and 100 Endo diet recipes.

For Endo diet in this book, it consists of 3 phases, I’ll quote it from the book.

Page 137:

Phase 1: The Repair Phase

Phase 1 of the diet is the strictest, but don’t worry, it only lasts for 1 to 2 months. The goal of this phase is to begin the process of rebalancing your gut microbiota, heal your gastrointestinal tract, lower inflammation, stabilize blood sugar, strengthen and rebalance your immune system, reduce toxins from your diet and encourage gentle detoxification.

Page 141:

Phase 2: The Rebalance Phase

Phase 2 of the diet lasts 1 to 2 months. This phase is designed to strengthen your army of beneficial bacteria and slowly begin the reintroduction of foods to expand your dietary choices.

Page 146:

Phase 3: The Rebuild Phase

Phase 3 of the diet is the maintenance phase. This phase is rich  in prebiotic and probiotic foods to encourage growth of your beneficial bacteria. In addition, the dietary recommendation are designed to reduce your symptoms and help ypur body continue to heal.

The 3 phase sounds good to me, I don’t know how well I will do but I’m willing to give it a try! I started the phase 1 yesterday, I will post a journal about it in a different entry. Wish me luck!

Blood Test Result: Feb4

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As I mentioned before, my last ultrasound on Feb 4 found a fibroid and chocolate cysts (endometrioma) on my ovaries other than my Adenomyosis. My doctor ordered me to get my blood tested, she ordered 5 different tumor marker tests. I felt nervous just to read the word “tumor” on the paper >_<

Tumor Marker? What is That?

According to University of Iowa Hospitals and Clinics:

Tumor markers are substances that can be detected in higher than normal amounts in the blood, urine, or body tissues of some people with certain types of cancer. A tumor marker may be produced by the tumor itself, or by the body in response to a cancer presence.

Tumor markers may be proteins, antigens, or hormones. Tumor marker tests are not used alone in diagnosis because most markers can be found in elevated levels in people who have benign conditions, and because no tumor marker is specific to a particular cancer. 

There are 16 tumor markers, you can read the complete list here.

My doctor ordered 5 markers to be tested:

AFP (Alpha-fetoprotein)

Primary Cancer Site: Liver, germ cell cancer of ovaries or testis

Secondary Cancer Site (>50%): Stomach

False Positives: Pregnancy

Other Benign Diseases Detected: Cirrhosis, hepatitis, toxic liver injury, inflammatory bowel disease, ataxia telangiectasia, Wiscott-Aldrich Syndrome

Normal Values: 0-6.4 IU/ml in men and nonpregnant women

Alpha-fetoprotein (AFP) is a protein produced primarily by the liver in a developing baby (fetus) and the portion of a developing embryo that is similar to the yolk cavity in bird eggs (yolk sac tissues). AFP levels are typically elevated when a baby is born and then decline rapidly. Liver damage and certain cancers can increase AFP concentrations significantly. This test measures the level of AFP in the blood.

AFP is produced whenever liver cells are regenerating. With chronic liver diseases, such as hepatitis and cirrhosis, AFP may be chronicallyelevated. Very high concentrations of AFP may be produced by certain tumors. This characteristic makes the AFP test useful as a tumor marker. Increased amounts of AFP are found in many people with a type of liver cancer called hepatocellular carcinoma and in a liver cancer occurring in infants called hepatoblastoma. They are also found in some people with cancers of the testicles or ovaries.

AFP exists in several different variants. The standard AFP test is for a total AFP, one that measures all of the AFP variants together. This is the primary AFP test used in the United States.

One of the AFP variants is called L3 because of its ability, in the laboratory, to bind to a particular protein called Lens culinaris agglutinin. The AFP-L3% test is a relatively new test that compares the amount of AFP-L3 to the total amount of AFP. An increase in the percentage of L3 is associated with increased risk of developing hepatocellular carcinoma in the near future and of having a poorer prognosis, as the L3-related cancers tend to be more aggressive.

Among patients with low total AFP, AFP-L3 can be higher in those with hepatocellular carcinoma than patients with benign liver diseases. Tumor markers including total AFP and AFP-L3 are used in addition to ultrasound for surveillance of hepatocellular carcinoma in Japan. This practice is different from that in the U.S. and Europe, but the two tests are occasionally ordered by healthcare practitioners in the U.S.




CA-153 (Carbohydrate Antigen 153 / Cancer Antigen 153)

Primary Cancer Site: Breast

Secondary Cancer Site (>50%): Often not elevated in early stages of breast cancer

False Positives: –

Other Benign Diseases Detected: benign breast & liver cancer

Normal Values: < 31 U/ml

Cancer antigen 15-3 (CA 15-3) is a protein that is produced by normal breast cells. In many people with cancerous breast tumors, there is an increased production of CA 15-3 and the related cancer antigen 27.29. CA 15-3 does not cause cancer; rather, it is shed by the tumor cells and enters the blood. This test measures CA 15-3 in the blood.

Since CA 15-3 can be measured in the blood, it is useful as a tumor marker to follow the course of the cancer. CA 15-3 is elevated in fewer than 50% of women with early localized, breast cancer or with a small tumor, but is elevated in about 80% of those with breast cancer that has spread (metastatic). Because not all women with invasive breast cancer will have elevated CA 15-3, the test is not useful in all cases.

CA 15-3 is not recommended as a screening test to detect breast cancer in women because it is non-specific. It may also be elevated in healthy people and in individuals with other cancers such as colonlungpancreasovarian, or prostate malignancies or certain conditions such as cirrhosishepatitis, and benign breast disease.




CA-125 (Cancer Antigen 125)

Primary Cancer Site: Ovarian

Secondary Cancer Site (>50%): Breast, colorectal, uterus, cervix, pancreas, liver, lung

False Positives: Pregnancy, Menstruation

Other Benign Diseases Detected: Endometriosis, ovarian cysts, fibroids, cirrhosis, peritonitis, pancreatitis, pleural effusion, pelvic inflammatory disease

Normal Values: 0-35 U/ml

Cancer Antigen 125 (CA-125) is a protein that is present on the surface of most, but not all, ovarian cancer cells. This makes the test useful as a tumor marker in specific circumstances. The CA-125 test measures the amount of CA-125 in the blood.

Significantly elevated concentrations of CA-125 may be present in the blood of a woman who has ovarian cancer. Thus the test may be used to monitor the effectiveness of treatment and/or for recurrence of the cancer. However, not all women with ovarian cancer will have elevated CA-125 so the test may not be useful in all cases.

Ovarian cancer is the fifth most common cause of cancer death in women. According to the American Cancer Society (ACS), the lifetime risk of a woman developing ovarian cancer is about 1 in 75 and the lifetime risk of death is 1 in 100. ACS estimates that about 22,000 new cases are diagnosed each year in the U.S. and about 14,000 women die of it.

Currently, less than 20% of ovarian cancers are found in the early stages before they have spread outside the ovary. The primary reason they go undetected is that the symptoms of ovarian cancer are fairly non-specific.

The need for a reliable method for early detection of ovarian cancer among asymptomatic women continues to drive ongoing research. In the meantime, regular physicals, pelvic exams, and an awareness of family history and symptoms are important.

CA-125 is not recommended as a screening test for asymptomatic women because it is non-specific. Small quantities of CA-125 are produced by normal tissues throughout the body and by some other cancers. Levels in the blood may be moderately elevated with a variety of non-cancerous conditions, including menstruation, pregnancy, and pelvic inflammatory disease.




CA-19-9 (Cancer Antigen 19-9)

Primary Cancer Site: Pancreas, colorectal

Secondary Cancer Site (>50%): –

False Positives: –

Other Benign Diseases Detected: pancreatitis, ulcerative colitis, inflammatory bowel disease

Normal Values: < 33 U/ml

Cancer antigen 19-9 (CA 19-9) is a protein that exists on the surface of certain cancer cells. CA 19-9 does not cause cancer; rather, it is shed by the tumor cells and can be detected by laboratory tests in blood and sometimes other body fluids. This test measures the level of CA19-9.

Since CA 19-9 can be measured in blood, it is useful as a tumor marker to follow the course of the cancer. CA 19-9 is elevated in about 70% to 95% of people with advanced pancreatic cancer. (Read more on the Test tab of this article and in the Pancreatic Cancer article.)

However, CA 19-9 may also be elevated in other cancers, conditions, and diseases such as: gallbladder and bile duct cancers (cholangiocarcinoma), colorectal cancer, gastric cancers, ovarian cancerlung cancerliver cancer, bile duct obstruction (e.g., gallstones), pancreatitiscystic fibrosisthyroid disease, and liver disease. Small amounts of CA 19-9 are present in the blood of healthy people. Since CA 19-9 is not specific for pancreatic cancer, it cannot be used by itself for screening or diagnosis.




CEA (Carcinoembryonic Antigen) 

Primary Cancer Site: Colon

Secondary Cancer Site (>50%): Kidney, thyroid, liver, lymphoma, lung, stomach, melanoma, bladder, ovary, cervix, breast, pancreas, stomach, bladder

False Positives: Cigarette smoking about 5% of the population has above normal CEA

Other Benign Diseases Detected: pancreatitis, hepatitis, COPD, lung infection, inflammatory bowel disease, biliary obstruction

Normal Values: < 3 ng/ml in non-smokers < 5 ng/ml in smokers

Carcinoembryonic antigen (CEA) is a protein that is present in certain tissues of a developing baby (fetus). By the time a baby is born, it drops to a very low level. In adults, CEA is normally present at very low levels in the blood but may be elevated with certain types of cancer. This test measures the amount of CEA in the blood to help evaluate individuals diagnosed with cancer.

CEA is a tumor marker. Originally, it was thought that CEA was a specific marker for colon cancer, but further study has shown that an increase in CEA may be seen in a wide variety of other cancers. CEA can also be increased in some non-cancer-related conditions, such as inflammationcirrhosispeptic ulcerulcerative colitis, rectal polypsemphysema, and benign breast disease, and in smokers. For this reason, it is not useful as a general cancer screening tool, but it does have a role in evaluating response to cancer treatment. When an individual has been diagnosed with cancer, an initial baseline test for CEA may be performed. If this level is elevated, then subsequent serial testing of CEA may be performed to monitor cancer as the individual undergoes treatment.




Here are My Blood Test Results…

As you can see I have two markers that show elevated numbers. My CA-125 score is 679.4 U/ml (normal score is < 35 U/ml) and my CA-19-9 score is 152.6 U/ml (normal score is < 27 U/ml). The first time I saw these numbers at the hospital, I felt hot flush suddenly crawling to my chest and head, the same feeling when I had when I was in a motorcycle accident a few years ago. You know something bad is happening, you know it’s not a dream, and you can’t stop it.

So, an elevated CA-125 could be caused by Endometriosis. I have a Chocolate Cysts (Endometrioma) which is a sub-type of Endometriosis. The sad thing is from what I read on Dr. Andrew Cook’s book, “The Endometriosis Health&Diet Program: Get Your Life Back

page 28:

If the patient has an elevated CA-125 reading, it is more likely that she has invasive stage III or stage IV Endometriosis rather than non-invasive stage I or II.

My doctor doesn’t speak English fluently. She never told me that I have invasive stage III or IV Endometriosis. She just told me that she’s concern about how high the CA125 and CA199 test results, and she’s afraid that the cysts will cause problems to my ovaries. She told me that I will have to take another ultrasound and blood test one month from now to see whether the cysts grow bigger and/or the CA125 and CA199 readings is elevating. If they are, she said I will need surgery. But, if the cysts were shrunk, then we will discuss different treatments.

To be honest, I don’t really understand what kind of surgery she was talking about. She couldn’t explain the condition very well in English. It’s frustrating. Maybe I need to go to a different hospital. I know a hospital that some of the doctors are from America or Europe, even the local doctors are fluent in English, but the thing is it’s so expensive. I’m afraid I can’t afford the price. Oh… the dilemma of being a poor ill foreigner in China >_<

I don’t want to get any surgery here. If I was going to get one, I will do it when we move to the USA. Until that time has come, I will do an alternative treatment to shrink the Endometrioma!

I just started Dr. Andrew Cook’s Endo Health and Diet Program today, I will talk more about it in a different post. Meanwhile, I’m wishing you, Adeno and Endo Warriors, pain-free days!

My Best Friend, Hot Water Bags

Remember my best friends?

The gray monster leaked last month, made me and my bed wet in the middle of the night 😆

The cute kitty worked so hard to make me warm, it turns into this

As you can see, its almost explode itself 😆😆😆 

I guess both water bag was made from cheap materials, its made in China so what do you expect, lol. Kidding… some Chinese products have good qualities. For these water bag particularly, my husband bought it at a gift shop nearby our apartment and it was buy one get one thing, so now you know why 😬😬😬

I decided to buy a new bag to replace them from Taobao. I bought a different variety with better quality.

A hot water bag with belt to hold it so I don’t have to do the hard work! 

This set consists of a belt, an electric hot water bag, and a charger. The bag has thermometer on it, so you know how hot it could go. Mine could go until 74.8 degrees celcius. The charger will shut it self after hit the maximum temperature.

I have been using it for a week now. It works great!  I don’t have to hold the bag anymore, I just need to strapping it on my waist and walah! I feel warm! 

I haven’t try how powerful it is to relief my period pain, so we will see soon…

I’m pretty sure that hot water bag or hot pad is every  Adenomyosis/Endometriosis ladies’ best friend. It helps to relief the pain and the warmth give us comfort. How about you? What’s your best friend looks like? 😊😊😊

Adenomyosis and Me


First time I heard about adenomyosis was 3 months ago. I went to gynecologist to check why I always get severe menstrual pain this last 2 years. By severe here I mean 2 few days of stay in bed because of massive pain on my uterus, nausea, and back pain at the same time. The pain will be lessen after day 3, it means only cramps that will last until day 6. On day 6-9 or sometimes 10 I will feel shooting pain around my butt. And after that everything will back to normal.  Yes, 10 days of pain every month  is really frustrating! I search information online about menstrual pain (dysmenorrhea) and I found out about endometriosis. I was afraid I have this condition that’s why I decided to seek gynecologist. The doctor sent me to get USG check and HPV test. The result was I diagnosed with adenomyosis and also got high risk HPV but in mild condition, so I only need to make regular check every 6 months to see whether there’s change on my cervical cells. 2 bad news at a time, it was hard!

I read about endometriosis before, but never know about adenomyosis. My doctor didn’t speak English, only the nurse. She told me that I have adenomyosis. When I asked what is that? She could not explain it in English. She only said that there’s a problem on my uterus 🙁 She told me if I’m planning to have baby, I need to check my fertility at different hospital. When I asked whether the doctor there speak English, she said.. maybe not.

So I walked out from the hospital with big question mark on my head. I jumped on the bus and start to search information online about adenomyosis.

According to webmd.com, Adenomyosis is a condition in which the inner lining of the uterus (the endometrium) breaks through the muscle wall of the uterus (the myometrium). Adenomyosis can cause menstrual cramps, lower abdominal pressure, and bloating before menstrual periods and can result in heavy periods. The condition can be located throughout the entire uterus or localized in one spot.

adenomyosis vs endometriosis

You can see from pictures above the difference between adenomyosis and endometriosis. If adenomyosis the endometrium grow inside uterus muscle, for endometriosis the endometrium growth outside uterus.

From what I read, the cause of adenomyosis remains unknown. It will disappear after menopause and it will cause infertility for some women. There are some way to treat the symptomps but the only way to cure it is by hysterectomy (removal of the uterus). You can read more about adenomyosis here

It sound like bad news for me. I still want to have children. I don’t want my uterus to be removed 🙁

I went to hospital hospital that the nurse told me with my Chinese friend. She helped me to talk to the doctor. Different from the first hospital I went, in this hospital they have no private room for the patients. When we did consultation there were another 10 ladies inside the room queuing. I felt so uncomfortable! Even on the internal USG room, it’s not a private room. There were 2 other ladies queuing. I felt so uncomfortable! The internal USG result showed that I do have adenomyosis and bulking uterus. The doctor sent me to do different test, but I never did it. I need Chinese person assistant to do the next test. My Chinese friend went out of town the week after.  I was busy with my new business and school. I just never did it.

I want to get cure with alternative way. I don’t want to get surgery. I’m thinking to try traditional Chinese medicine and acupuncture treatment or ayurveda. I read some people successfully heal this way.

This Thursday I will go to traditional Chinese medicine hospital to get check. I will write down the result later.

Let’s hope for the best ^_^