Day 30

It’s been a month since my last update on this blog, I think I have a good news to share. I reached the 30th day of my monthly cycle. It’s a miracle! I have never reached Day 30 of my cycle these last 5 years!

As I mentioned before on my old post, I started to develop Adenomyosis symptoms when I moved to China in 2013. Since then, my cycles had shortened from 28-30 days cycle to 23-25 days. It’s tiring when you have menstruated most of the time and you have to feel the pain on that time.

So, let’s talk about what’s going on these last 30 days

Less Pain, Yay!

I have more pain-free days compare to my last cycle. Including this morning, I have 10 pain-free days compare to 3 pain-free days on my last cycle.

Cycle Length

Last cycle: 24 days

Current cycle: 30 days and still counting

Endo/Adeno Diet

  • I eat better this cycle, more greens, orange, and red vegetable.
  • Completely cut off dairy, wheat, eggs, and all meats except fish
  • Sugar: almost cut off completely, I only take a little sugar from fruit and raw honey (1tsp per day)
  • I drink plenty of fluid: in average 1.3L-2L of lemon water every day + 0.5L plain water + 0.7L of herbal teas (raspberry leaf tea + Yogi’s women moon cycle/kava/other herbal teas)
  • A limited amount of fruits. I’m avoiding fruits that taste too sweet for me, such as oranges. Bananas (1pc/day), mangoes(1 small-medium), pineapple(the max is quarter of the fruit), and apple(1 small-medium) are fine. Any fruit that not too sweet is fine.
  • Tempeh is a NO NO for me. I ate 3 small slices of Tempeh as a test for food sensitivity 2 weeks ago, 30 minutes later I had cramps, lower back pain, and rectum pain. FYI, I’m from Indonesia, for Indonesian, Tempeh is one of the main food that common people eat every day. I really missed to eat it. I have been avoiding to eat it these last 2 years because it made of fermented soy. I read that the oestrogen level is lower when a soy product is fermented that’s why I gave it a try again. The answer was, my body is too sensitive to any kind of soy product including the fermented product. This reality made me feel very sad.

Exercise

Well, I didn’t do very well with the exercise effort. I could only do 2-3 times of yoga/walk in a week. I will do better, promise.

Energy

I have more energy these last few weeks, I think the supplements regime started to show the result! Yay!

Supplements

Serrapeptase

I increased my Serrapeptase dosage from 3×40,000IU to 6×40,000IU per day. The first week after I increased the dosage something happened to my body. My stomach swelled so big and it felt really hard when I touched it, almost like a stone! I also felt pain in my both ovaries (felt like someone squeezed my ovaries really hard!) and also my rectum (squeezed and stabbed pain). These pain last for about a week, but the swelled belly last for about 10 days. I’m not sure it was a good sign that Serrapeptase fighting the Endometrioma/Adenomyosis/Fibroid or something else. I wouldn’t know until I have my next sonogram.

Btw, I lost my weight again, mostly the fat from my stomach. Now I can see and feel with my hands how swollen my uterus is and how swollen my ovaries are, it’s amazing and scary at the same time. You can feel it there, your enemies, laughing… hijacking your body, ready to twist your ovaries at any time…

Enlarged Ovaries

Spirulina

I started taking Spirulina 11 days ago. The one that I bought is 500mg tablets Organic Spirulina from Healthy Origins. I started with 1 tab x 2 per day and now I’m on 2 tabs x 3 per day. The first day of taking Spirulina I felt feverish, I read it’s a  normal reaction for some people because it’s high in protein content that increases metabolism which may elevate the body temperature. I also have the same reaction on the day I increased the dosage to 2 tab x 3 per day.

Spirulina has so many benefits for our body, but the benefits that really caught my attention are it regulates the menstrual cycle, relieve pre-menstrual syndromes, support immune system, and support the growth of healthy bacteria in our guts. These benefits are essential for people like me, who is living with Adenomyosis, Endometriosis, and Fibroid.

I’m quite sure that Spirulina is of the causes that I have a longer cycle this month, but to prove my theory, I have to wait until few more cycles to see whether I still have longer cycles.

Current Supplements List
  • Serrapeptase (40,000 SPU x 6) : anti-inflammatory
  • Nattokinase (2,000 FU x 3): pain-support, anti-thrombotic
  • Pycnogenol (30mg x 2): hormone balancing, antioxidant
  • NAC (600mg x 2): detoxification, anti-inflammatory
  • DIM (150mg x 1): hormone balancing
  • Vitex/Chaste Berry (40mg x 1): hormone balancing
  • Curcumin (500mg x 2): anti-inflammatory
  • Multivitamin and mineral supplement: methylation support
  • Vitamin D (1000-4000IU + fatty food): methylation support — I still haven’t taken this separately
  • Magnesium (400-1200mg): sleep support — I only take 100mg x 2
  • Milk thistle/Silymarin (300mg x 1): detoxification support
  • Probiotic: immune support, intestinal support, hormone balancing
  • CoQ10 (100mg+high fat meal): mitochondrial
  • Omega-3 (500-4000mg): stress support, at this moment I’m taking cod-liver oil because I have that on hand, I will change to this after I finished my bottle.
  • Spirulina (500mg x 6): detoxification, immune support
  • Melatonin (5mg):  sleep support
  • Cramp Bark (as needed)

So far my effort has shown a good result related to pain. It’s a baby step, but I know I can do this. For the whole information of my efforts since last month, you can check it here

I still have a long way ahead of me, I’m not sure whether all of these efforts will get rid of my fibroid and endometriomas, or shrink my uterus because of the damaged that caused by Adeno. We will see in few months! Meanwhile… I feel grateful because I have less pain and I have more energy.

I wish you ladies health and pain-free days!

Because Adenomyosis is NOT Good Enough!

BenQ Medical Center, Nanjing, China
BenQ Medical Center, Nanjing, China

I went to BenQ hospital today. I haven’t got my uterus checked up for more than a year now. I totally forgot. I kept delaying to go to the hospital, waiting until I got no pain at all. And when that time came, I forgot about it because I had to catch up with the chores that I have left behind while I was in pain. The same cycle repeats until 16 months later, which is today.

I took a subway to go to the hospital. It was a sunny but a very cold day. Well, it’s winter, I couldn’t expect it was sunny and warm😬 Overall… pretty nice day.

The hospital was pretty quiet compares to the normal day. Today is Sunday and it’s Chinese New Year holiday.

I met a new gynecologist, surprisingly she speaks a little bit English. She sent me to get an ultrasound on the second floor. No queues at all at the gynecological sonogram room, the technician also checked my uterus thoroughly, no rush at all. Hospitals in China usually very busy, the checking process usually seems rushed, but not today.

After 10 minutes waiting, I got the result.

What a wonderful day for Ellie! Now I have Adenomyosis, fibroid, and chocolate cysts. Yep, because Adenomyosis is not good enough! A warrior needs more medical conditions, more pain to hold. Isn’t that right, God?

My current uterus size is 85x81x89mm, it’s bigger than my last scan in October 2016, which was 70x61x69mm. I kinda knew that my uterus grew bigger because all of my jeans didn’t fit anymore a few months ago, meanwhile, my weight is about the same. But I’ve never thought that I will have fibroid and chocolate cysts. My last ovaries reading was normal. Well.. not anymore…

My gynecologist told me to take a  blood test so they can check something related to the cysts and the risk for ovarian cancer. I will get the result in two days.

I felt sad after receiving that bad news. I walked towards a waiting room where not many people around. I cried.

Not long after that my husband called, he asked me how’s the result? I delivered the bad news while crying. I could hear his voice breaking. He asked me whether I want him to pick me up at the hospital. I said no, I want to take a walk for quite awhile on the way home.

Well, it’s a sad day for Ellie today. I don’t feel angry to God anymore. I just feel sad and tired…

Adeno Belly

People who are living with Adenomyosis usually have what we call “Adeno Belly”. You will look like you’re pregnant but you are not.

I always have a big belly since I was young although my body is skinny. I thought that is a genetic factor because my mom also has the same belly. My mom said that some people are naturally have “weteng kendil” or “pot belly”, it means these people will never have a flat belly, just like they have a small pot in their belly 😳 I grew up believing that it’s normal, and I’m one of those people, until I joined the Adenomyosis support group.

Most of the ladies say that they look pregnant because their bellies are bigger than normal people’s belly. I noticed that the more severe the condition is the bigger the Adeno belly they have. It’s sad isn’t?

I’m trying to understand the logic behind this Adeno belly. One of the symptoms of Adenomyosis is a boggy uterus, it means the uterus size of people with Adeno is much bigger than the normal uterus size. The normal uterus size for a person before attaining puberty is 3.5cm x 1cm (length and anteroposterior diameter), after puberty is 7.6cm x 4.5cm x 3cm (length, width, thickness). The volume keeps changing depending on the menstrual cycle from 75cc to 200cc. My uterus size as per October 2016 is 7.8cm x 6.8cmx 7.8cm, it was 7cm x 6.1cm x 6.9cm on April 2016. Yes, it’s getting bigger! And I’m not happy about it 😩

So why the uterus becomes enlarged? The endometrium tissues implants in to the uterine wall causes inflammation. Yes, our uterus are in an inflammatory state all the time, that’s why it’s bigger.

Every time we get our menstruation, our uterus is Inflamed, that’s normal. And Every time we eat inflammatory food, we make this inflammation getting worse. And for people with Adeno, you can see the result in couple hours.

On Wednesday night, I ate sushi for dinner.  The only non-vegetarian thing I ate was salmon. FYI, salmon is high in Omega-3 which means it’s anti-inflammatory. But why the next day my belly turned into this?


I felt very bloated. I also felt tightness on my lower abdomen. I didn’t eat anything inflammatory that night, as far as I know. So why this was happening?

I tried so hard to track what I ate and drank that day. What did I do wrong? Then I see the sushi picture again. Did you see the yellow thingy on top of the avocados and grilled salmons? Yes, that was mayonnaise!

So what’s wrong with mayonnaise? Commercial mayonnaise is made from soybean oil, corn oil, or other vegetable oil that contains omega-6. Too much omega-6 in our body can cause inflammation. It also contains sugar, which means more trigger for inflammation! Don’t forget about the artificial ingredients such as preservatives, additives, and monosodium glutamate (MSG)! 😱😱😱Don’t worry, you still can eat mayonnaise if you wanted. You just need to make homemade mayonnaise for healthier options 😉

Back to my Adeno belly. So, mayonnaise is the only inflammatory food that I ate that night. And as you can see, the effect is real! Adenomyosis is a real deal!

The more you listened to your body, the more you understand about it. We, people with Adenomyosis have uterus that in inflammatory state every single day. We need to help ourselves to lower our uterus’ suffering. I’m not sure how to get rid off our Adeno belly as long as we still have Adenomyosis, but at least I will try not to make it getting worse… So, let’s do it together! 😊🙌🏼💪🏻

Reference:

http://m.newhealthadvisor.com/Normal-Size-of-Uterus.html

http://healthyeating.sfgate.com/disadvantages-mayonnaise-2068.html

Update:

I forgot that the sushi sauce was made of soy sauce. Helloooo…. soy!!! Our biggest enemy!!! 😅😅😅